Friday, December 15, 2017

Report in Review

I've decided to re-name my Friday posts "Report in Review," but it's still the same content - I'm going to share something I came across this past week that I want to highlight, whether it's something I'm watching, reading, listening to... you get the picture!

The holidays are in full force right now - we're in the middle of Hanukkah, and so close to Christmas. I'm sure you've all seen a million different gift guides (here, on other blogs, on other websites) - they're really everywhere! But I want to share a different type of gift guide today.

Image here
I mentioned the last fundraiser Lin-Manuel Miranda did for Puerto Rico after Hurricane Maria. Now, his organization is partnering with Toys"R"Us to help spread holiday cheer for kids in Puerto Rico. He knows that many families may not have the time - or resources - to buy gifts for their children for Three Kings Day (which is the "big" holiday in Puerto Rico), but doesn't want those kids to miss out.

It's so easy to help out! Go to the website HERE, and pick whether you want to purchase a $5, $10, or $20 gift, and how many. The checkout process takes less than five minutes! It's so incredibly easy, and is a great way to spread some cheer and take a step back from the craziness that can come with the holidays.

Thursday, December 14, 2017

Why I'll Never Be A "Typical" Blogger



I think a lot of people don't fully realize what goes on behind-the-scenes in blogging. For every picture you see here, or on my Instagram, there are at least 10 more versions of the picture that didn't make it on the blog. And a lot of bloggers set up real photoshoots - they scout for locations, use photographers, and plan multiple outfit changes to get as much photography content as they can.

I have absolutely no problem with this - I love looking at bloggers pictures as much as anyone else! But that's not something that you should expect to see here too often. Photoshoots are more of an ordeal for me than for most bloggers! Location scouting isn't the easiest when you have to make sure it's accessible, and have to make sure that you can get a ride! And there is definitely no such thing as a quick outfit change for me! That would mean there was someone there to help me change (usually my mom), plus a bathroom big enough to fit my wheelchair, plus a lot longer than five minutes.

There's also the issue of the outfits themselves. I've mentioned this before, but finding clothes that fit me well is hard. I fit in kids clothes, but they don't usually quite fit my style... and women's clothes are usually too big. That means that when I find something that fits, I wear it a lot, and I buy it in multiple colors if I can. This works out just fine in my life, but would make incredibly boring blog material!


I hope that none of this comes off as a complaint, but just as an explanation. I love that blogging lets everyone have a voice, and lets voices be heard that might not otherwise have much of a platform. With that being said - there are definitely some blogs that are bigger/more popular than others, and therefore, some bloggers that are able to have bigger voices because of that. Even though my posts might not always be the most professional or polished, I hope that they're still adding something useful to the online conversation!

Wednesday, December 13, 2017

Be Back Tomorrow!

When it rains, it pours... I thought that I'd be back to regular posting, but I've been dealing with some computer issues. I think that I finally have it figured out, and should be back tomorrow, fingers crossed!

Tuesday, December 12, 2017

Holiday Pajamas

My Dad LOVES documenting through pictures and video. When I was little, we couldn't start opening any presents until the video camera was set up and recording, and the regular camera was nearby, too, to snap some pictures.

This led to the need for Christmas pajamas. By middle school, I realized that if I was going to be recorded every Christmas morning, I'd need a new pair of jammies every year! Now that we're a little older, we don't open presents until Christmas evening, after family has left for the day. But I still think that's the perfect excuse to buy a new pair of holiday pajamas to change into after everyone is gone!

I've gotten a lot of my Christmas PJs from Old Navy - they have some of the cutest options, and they're always so comfortable!

Red and Green Striped Pants: These thermal underwear style pants are so festive and so cute!

Black and White Reindeer Pants: The fleece pants are always my favorite style - they're so warm and cozy. The reindeer pattern add the perfect holiday touch.

Baby It's Cold Outside shirt: Classic Christmas song lyrics on a simple pajama top that you can wear even after the holiday season ends.

Doggie Pajama Pants: I couldn't pass up these adorable flannel pants with Christmas-themed puppies all over them!

White Pajama Top: This simple white top goes with any of the pants in this picture, and probably any of the pajama pants already in your closet, too.

Striped Onesie: If you're a fan of onesies, this striped one is perfect for the holidays!

(This post uses affiliate links; I may earn a commission from any clicks or purchases you make.)


Monday, December 11, 2017

CMOA On Ice

I'm back! My exam is over, my presentation is complete, and my papers have all been handed in. I'm really excited to have this semester behind me!

While I was away from the blog, I did fit in something fun - I went to CMOA On Ice, an after-hours event at the Carnegie Museum of Art. I've been to a few really fun after-hours at the Carnegie Museum of Natural History (which is actually attached to the Art Museum), but was excited to explore the other half of the museum this time. I'm happy to say that I wasn't disappointed! We were told to wear our "holiday best or holiday worst," and luckily, I had the perfect sweater for the occasion in my closet.
The event was called "CMOA On Ice" because they installed a temporary ice skating rink into the museum's Hall of Architecture. It was so cool to see an ice skating rink inside of the museum - not something you'd ever expect to see! The rest of the art museum was open for exploring, too, and they had plaster ornament-making, silkscreening, hot chocolate bars, and tons of cookies!

The prettiest part was looking at all the decorated Christmas trees. They were all themed after children's books, and the decorators did such an incredible job! You can see the Jungle Book and Wizard of Oz trees below - how amazing are they?!
If you get the chance, I highly recommend you check out the Christmas tree displays, and look around the rest of the museum while you're there - you won't regret it!

Monday, December 4, 2017

Health Activist Expo

Sorry for the break I've had to take - with finals, and work, and my fellowship coming to and end, time has been a little tight for me! I'm hoping to get three posts up this week, and then things should go back to normal after that.
Last week, my Health Activist Fellowship (which I talked about here and here) had its finale, the Health Activist Expo. It was held downtown at the August Wilson Center, and each fellow had a table to display a poster and talk about the project that we'd each been working on. There was a great turnout - more than 100 people came to find out about our projects, and there were even some members of the media there!
It was really exciting to be a part of the fellowship, and to have so many people show interest in what I've been working on!

In 2018, I hope to start talking to local businesses about accessibility, and helping them understand the importance of an accessible entrance for people like me. I want to be an ally to these businesses, not an adversary!

If you're interested in learning more or getting involved, you can e-mail me at accessibleyouniverse@gmail.com. I'd love to hear from you!

Tuesday, November 28, 2017

My Thanksgiving

I had lots of plans for my Thanksgiving and for posts on this blog (I really wanted to do a Black Friday post!) but sometimes, things don't go exactly as planned.
I wrote about having to go to the ER for a feeding tube issue in this post - because of that, I decided to schedule an appointment to get it replaced. I scheduled for the Monday of Thanksgiving week, so that it would be done before the holiday, and I didn't have class, so I could take the day off of work guilt-free. It was replaced with no issue (other than a bit of a wait at the hospital) and I went home and back to work the next day.

But by Wednesday, it was becoming clear to me that maybe there was some sort of issue. My skin around the feeding tube "button" was really red and irritated, and it seemed like the button was really digging into my skin. I wasn't sure what this meant, so I did some quick Googling and nothing I read seemed too alarming. I decided to give it a few more days and see if it calmed down.

It didn't calm down, though, and by Thanksgiving evening I knew I'd have to go in to have it looked at the next day. It was certainly not the most enjoyable Thanksgiving for me - it's hard to stuff yourself with mashed potatoes when the skin on your stomach is irritated!

Luckily, they were able to squeeze me in on Wednesday morning - not surprisingly, things weren't too crowded at Interventional Radiology on the day after Thanksgiving! They took some water out of the balloon that holds the feeding tube "button" in place, and that seems to have solved the issue. It was a quick fix, but it did put a bit of a crimp in my plans for the weekend.
That's not to say, though, that I didn't fit anything in! I managed to do a little bit of Black Friday shopping (mostly online - I can't deal with the crowds), treated myself to a blowout at Drybar (where I also picked up their candle) and made time to see family and friends who were in from out of town. So, it wasn't a completely ruined holiday weekend!

I hope that you all enjoyed your Thanksgiving - let me know in the comments what you did to celebrate!

(This post uses affiliate links - I may earn a small commission for any clicks or purchases you make.)